Tuesday, September 30, 2008

bike is gone

Well i sold my bike saturday and bought kev this gun hes been wanting for his birthday im kinda sad about my bike but kev said we will buy me another one next summer and we are also thinking about moving back to bonneylake so we will see what happens after we refinance our house were a little worried we might have issues with refinancing it but were praying we wont but if so we will just sell it anyhow we wanting to move back for so many reasons saving money is a big one, and we want to be closer to our family&friends and we truley miss our old ward so i hope everything will work out for us

Monday, September 22, 2008

famly

Well yesterday "my" family came over a few didnt make it but its OK it was nice to be around just my family we don't normally get together so yeah my cousin Kimmy told me she might have a tumor in her kidney which could be cancerous, and that's another thing that might being in her way of getting prego so i guess she will find out hopefully soon. Im just glad we "all" got together and cached up on stuff and reminisced about the old days and i hope we continue to keep in touch more often

Thursday, September 18, 2008

kaydins appt

Well today is the long awaited appt. with the neurologist and i found out finally why he is the way he is he has two of the same cromozones so everything makes sense now and she told me that he might have slight heart issues but we will find out shes having me set up appt. with the oncology, and the cardiology pediatrician so we can get more answers and i have to take him to the hospital for his eeg test on October 6th the Doctor made it clear its important she said she thinks he could possibly being having seizures like i thought cause of his staring off into space . I thanked her and i started to cry a little because i feel like Ive waited it feels like forever to get some kind of answers i kinda felt stupid for crying but i was kinda relieved to finally know whats wrong kev did some research and i guess were lucky to have got kaydin into therapy when we did cause alot of parents didnt have that advantage and there kids situation was worse by not getting the help they needed anyhow here is some info so people can know and i dont have to repeat myself to everyone.

Information about the Potocki-Lupski (dup17p11.2) Syndrome
Individuals with the genetic condition designated as dup(17)(p11.2p11.2) (OMIM# 610883), or dup 17p carry extra genetic information (known as a duplication) on the short arm of chromosome 17.
Each cell of the body should have 23 pairs of chromosomes (22 numbered chromosomes and one pair of sex chromosomes; XX for females and XY for males) that contain the complete genetic information (genome) for the individual. When the egg and sperm cells are formed, the pairs of chromosomes are separated in a process called meiosis, so that each egg or sperm contains only one copy of each chromosome. Errors that occur during this process can result in genomic imbalances such as missing or extra genetic material. These imbalances can cause genetic syndromes that are associated with a wide variety of clinical outcomes.
Many genetic syndromes that were first described on the basis of clinical findings were later found to be caused by genomic imbalances. New high-resolution laboratory tests—known as chromosome microarray analysis or CMA can now detect these genomic imbalances even when a particular syndrome is not suspected.
Two distinct conditions result from errors in meiotic recombination involving the short arm of chromosome 17. Smith-Magenis syndrome (SMS – OMIM #182290) is caused by a deletion, or loss of genetic material, on one copy of chromosome 17. This well-known syndrome is associated with developmental delay, mental retardation, congenital anomalies such as heart and kidney defects, and neurobehavioral abnormalities such as severe sleep disturbances and self-injurious behavior.
For every chromosomal deletion, there exists a reciprocal chromosomal duplication. Although the genomic mechanism for the deletion and duplication is the same, the clinical features of individuals are different. These duplication syndromes have their own distinct clinical features and should not be confused with the deletion syndromes.
Duplication of chromosome 17p11.2 – Potocki-Lupski syndrome (PTLS) (OMIM# 610883) is a newly recognized genetic condition with only a few dozen cases reported in the medical literature. Patients who have this duplication often have low muscle tone, poor feeding, and failure to thrive during infancy, and also present with delayed development of motor and verbal milestones. Many individuals who have PTLS have difficulty with articulation and language processing. In addition, patients may have behavioral characteristics similar to those seen in persons with autism or autism-spectrum disorders. Individuals with PTLS may have heart defects and sleep apnea. The facial features observed in PTLS are subtly similar between individuals but are not usually described as abnormal or striking by physicians.
While fewer than 50 persons with duplication 17p11.2 have been described in the medical literature, we know that this duplication is predicted to be observed in at least 1 in 20,000 individuals. Although PTLS is considered a “chromosomal” disorder, diagnosis is often missed on a routine chromosome analysis. Due to technological advances in cytogenetics, specifically the use of array comparative genomic hybridization (aCGH) for genetic diagnosis, microdeletions and microduplications can be detected with equal fidelity. Hundreds of chromosome segments can be analyzed at one time searching for chromosomal imbalances. We anticipate that many more individuals will be diagnosed with dup 17p11.2 as this testing is performed more routinely in persons with developmental delay, mental retardation, and/or autism spectrum disorder.

Thursday, September 11, 2008

goverment


As "one nation under God, with liberty (freedom) and justice (fairness) for all", the
government IS attempting to do it "God's way" with so much outreach.
Are we to choose for the government to now take a blind eye to God's wishes and stop it completely? And, yet so many emails are sent to fight to keep God involved, to defend Him.
So many want to have it both ways, to talk the talk, and that is so hypocritical.

Don't forget that God designed the entire world and splashed it with all colors.
He commands us to love one another. Period.
And that should reach well beyond these racist toned emails.

Nobody is above another, except for to lift another up.



Subject: FW: TAKE DOWN THE BIRD FEEDER!


Read all the way to the end.....the message is there!















I bought a bird feeder. I hung it on my back porch and filled it with seed. What a beauty of a bird feeder it is, as I filled it lovingly with seed. Within a week we had hundreds of birds taking advantage of the continuous flow of free and easily accessible food. But then the birds started building nests in the boards of the patio, above the table,< /B> and next to the barbecue. Then came the poop. It was everywhere: on the patio tile, the chairs, the table everywhere! Then some of the birds turned mean. They would dive bomb me and try to peck me even though I had fed them out of my own pocket. And others birds were boisterous and loud. They sat on the feeder and squawked and screamed at < style="FONT-WEIGHT: bold; FONT-SIZE: 24pt; COLOR: teal; FONT-FAMILY: 'Kristen ITC'">all hours of the day and night and demanded that I fill it when it got low on food. After a while, I couldn't even sit on my own back porch anymore. So I took down the bird feeder and in three days the birds were gone. I cleaned up their mess and took down the many nests they had built all over the patio. Soon, the back yard was like it used to be. quiet, serene and no one demanding their rights to a free meal.. Now let's see.< face="Tahoma"> Our government gives out free food, subsidized housing, free medical care, and free education and allows anyone born here to be an automatic citizen. Then the illegals came by the tens of thousands. Suddenly our taxes went up to pay for free services; small apartments are housing 5 families; you have to wait 6 hours to be seen by an emergency room doctor; your child's 2nd grade class is behind other schools because over half the class doesn't speak English. Corn Flakes now come in a bilingual box; I have to 'press one' to hear my bank talk to me in English, and people waving flags other than 'Old Glory' are squawking and screaming in the streets, demanding more rights and free liberties. Just my opinion, but maybe it's time for the government to take down the bird feeder. If you agree, pass it on; if not, continue cleaning up the poop












Tuesday, September 9, 2008

did the puyallup AGAIN!!!!!

We did the puyallup fair again we had to take the girls and wow i was pooped out by the time we were ready to leave we did rides pretty much the whole time since it was 1 per ride day which we definently took advantage of its a deal concidering that usually the tickets cost 88 cents a peice. The kids had a great time kev got sick from eating a fair burger and we met up with ted and becky and kev and te3d went on that turbo ride that right next to the sling shot ride i have pics but i cant get the computer to download the pics. I took kaydin on the haunted house ride(im such a mean mom) he freaked a little, he really doesnt like the rides so maybe next year he will like them. To top the night off we were on our wau home and i kept smelling poo it was so strong i knew something was wrong so i pulled into albertsons parking lot and kaydin decided he wanted to play in his poo(i about threw up) so i had to strip him nake din the parking lot and clean his hands with wipes while kev watched me of course. Anyhoo i think next year im only gonna go once to the fair cause man it costs an arm and a leg to eat or do anything. well better go do the mom thing

Sunday, September 7, 2008

puyallup fair

Well we decided to go to the fair with amy and arron yesterday and we had a blast when we first got there arron knew some guy that owned all those stands outside the fair so we got our food half off, and me and kev went on that big metal thing next to the cling shot ride the one you can see from the freeway and it was a thrill exspecially when they stop you at the very top which was a little freaky i personally think the ride we went on was and would be way better than the sling shot cause you get more action on the ride we went on (i cant remember the name) and it only cost us $15 for both verses $50 for the sling shot we tryed getting kaydin to go on rides but he would'nt he freaked and i think its because his first ride he was on was with arron,kev, and romeo on the bears and they spined that bear way fast and he freaked so every ride after that he didn't want to go on but he did walk threw the fun maze ride or whatever its called and he liked that it was funny when you have to walk threw the mirrors to find your way to the step he ran right into the mirror it was funny anyhoo me& amy went on 2 rides the last one amy picked and i felt sick but she was luvin it. I got to learn a little about mt.rainier and the lady told me im safe livin in yelm cause were high up so that was a relief to know she also told me we have 13 active mountians in the cascades we also saw kevs cousin darin he was workin and he gave us some hats and let kaydin climb on the tracters and he watched the kiddos while we went on the ride. Poor amy was sore from walking forever! Well on our way out we stopped at the stands that arron knew who the owner was (rex) and he gave us some free cotton candy and some warm scones mmmmmmmmmmmm! i never had a fair scone hummmmy. Well we have to do this all over on monday cause the girls didn't go cause they were with there nana&papa in Vancouver so were taking them on monday cause it s $1 per ride day which is cheap cause otherwise you pay $15 for 20 tickets which wont get my family far since it takes 4-5 tickets for each ride. Im glad we have such great friends that we can always have fun with anyhow better get off we need to go to church today!

Friday, September 5, 2008

hair cut

Well today i couldn't take it anymore Ive been contemplating on getting kaydin a Mohawk hair cut because i think there soooooooooooooooooooo cute on little boys (well the suddle ones) so i took him to the salon and finally did it i didn't do a drastic one he still has hair on the sides so when i get sick of it the hair stylist said it will be an easy fix. Kev wasn't to trilled at first nor April but i think he looks cute kev says every time he sees kids with a Mohawk he thinks there parents are drug's but whatever i tryed to post pics but my batteries went dead so ill post some tomorrow.
Well hopfully tommarow we will get to go to alder lake and just go put around and do whatever the girls are with nana in vanvouver untill sunday so we only have 2 kiddos

Thursday, September 4, 2008

our camping trip




Its was fun i still cant believe i jumped i thought for sure i was gonna back out but i didnt anyhow ive come to the conclusion that my kids need there own tent. and the baby really needs to be in her playpen next time all she did was cry the first night cause kev kept making me move and she was sleeping right next to me i swear the only one that slept good was kaydin i swear that kids sleeps like his dad (which is like a rock) i hope that we go alot more next summer and hopefully more of our friends and family will want to join us but if not we know that crystal and brit will be down. im glad we ended our summer with some excitement i look forward to next summer . oh yeah photos are crystal , and the other one is my daughter and britt