Wow i havent been here for a long while! Anyhoo so all of my kids have had the flu for it like forever but thank goodness they are all better exspecially kaydin he took it the worst as always, i still have a sniffle and kirstin is still coughing but way better so to everyone i encourage you to carry sanitizer in your purses/bags . other than that my days have been pretty lazy kevs buisness is still going and were still waiting to see what happens with our house. I would personally love to move back to bonney lake or orting i luv orting too! And i have also been wanting to go back to work but need to find a job at night. Well im gonna get off
Friday, October 30, 2009
Wednesday, October 22, 2008
Monday kev and Derek worked in rainier which is i feel the most gettoist place ever its worse than down town Seattle at night vs rainier in the middle of the day anyhow kev came out to go get something out of his truck when he noticed someone in the back of his work truck than proceeded to yell at whomever it was and kev said he scared the crap out of them and they jumped out of the truck and than he discovered there was somebody in the cab of the truck as well so he pleaded with the men to please not take his wallet and one of the men threatened to shoot kev if he got closer but they ended up taking the stereo and ran off and kev called the police and the cops found them down the road and arrested them both and they happened to both be minors and they didn't have a gun but kev said that day he decided not to take his 45 which he also told me he usually leaves in the cab of the truck which i am now grateful he didn't take it that day because they couldve used it on him and Derek missed the whole incident because he was upstairs of the house they were working on. So kevs next mission is to get his concealed weapons permit and bro-terry said he might be able to get it so well see that really scared me to think kev could have lost his life if he had taken his own gun that day Ive told him i wish he would stop working in rainier Ive been there once and told kev i would never go there again that place is scary the day i went there i man got murdered the day before like three houses down i lived in the ghetto but this place is beyond the ghetto if your not a thug,homeless,drug dealer than you better see your way out cause most likely there gonna rob you or shoot you the police told kev he would nt of cared if kev would have shot them he said the crime is overwhelming
Posted by shiree at 3:50 PM
Thursday, October 9, 2008
Well kaydin and i did the 48 hr in patient EEG testing at Mary bridge and it was boring very boring but in the same sense relaxing. He had about 20 wires hooked to his head plus they put respiratory and heart monitors on him while he slept and every time he would fall asleep the respiratory machine kept going off cause his breathing was low but they said nothing worry about but all wait to ask his Doctor at the end of this month and they couldn't tell me if he has any seizers cause the Doctor said the computer has organize all the data cause their so much than it goes threw a process than the doctors have to look at it than they will call me in about 2 weeks if they find anything. Plus he has a neurology appt on the 29th of this month and the nurses were great and they have great volunteers and Julie terry called me and told me next time if i know kaydins going to Mary bridge to let her know before hand and she will make sure she comes to pay a visit the reason is they had a schedule of what was gonna be going on this month and it said "clown visit" so i assumed it was Julie terry cause i know she comes to Mary bridge ive seen her there so mom called her and she called me and said she had no idea she was scheduled to be there but anyhow i thought that was very sweet of her and some little old Lady's came around with hand made quilts and stuffed animals and kaydin got a beautiful quilt and two stuffed animals plus they gave him and boat&sand table brand new still in the box they said they cant use it and someone donated it and they said since kaydin liked boats they wanted him to have it so that was cool and the woman next to my room came over and said hi and shes a foster mom and her foster son was having the same test she said shes in the process of adopting him he was 2 yrs old and she already has 13 children 5 of which she gave birth to but the others are adopted and 4 with disabilities she gave me resources to get 400 free pull-ups a month she said if your child had a diagnoses you get free dypers and she said she had more resources and gave me her number and e-mail so i could get them i thought she was an amazing woman taking in all those kids and she so upbeat i asked her how she does it with 4 kids with disabilities she said she just does "its life" 3 of them have mild retardation but only 7 are at home at the rest are grown up and moved out have great jobs and her daughter is in collage going to be a physical therapist so she and her husband must have did a great job raising them.
Heres my sucky part of my stay Derek forgot to transfer money into the account for the paychecks and we got payed on the 30 of September which was a Tuesday and he didn't transfer money until Saturday so Monday while I'm at the hospital i go and try to purchase a cranberry juice and my card was declined so i called the bank I'm $1,100 in the whole and they told me kevs pay role check was returned so yeah I'm still pissed and my house payment bounced,my power bill bounced and its Thursday and the check still hasn't cleared and of course Derek apologized but I'm still mad not to mention i will have fees but kev said that kdp will pay Ive had to rely and mom and dad to help buy me gas,dypers and food and I'm so lucky to have a friend like like Amy who came up Tuesday and brought kaydin coloring books,candy,snacks,and toys to have fun with and she brought me Starbucks yeah i know shame on me and oh yeah she brought her great sense of humor and we hammed it up and we gossiped well we made a point to when we realized we weren't cause some people think that me and amy gossip but we don't i wont say who said that even tho who said it is one of the biggest behind your back crap talker anyhow i could care less we just thought it was humorous so we try ed to find things to gossip about but really couldn't anyhow over all besides the money deal Mary bridge was so great to kaydin and i they were so nice and they really do care about the kids and kaydin did great specially since he had to be in the bed for two days but having toys helped plus they had 5 different channels of cartoons
Posted by shiree at 8:09 AM
Tuesday, September 30, 2008
Well i sold my bike saturday and bought kev this gun hes been wanting for his birthday im kinda sad about my bike but kev said we will buy me another one next summer and we are also thinking about moving back to bonneylake so we will see what happens after we refinance our house were a little worried we might have issues with refinancing it but were praying we wont but if so we will just sell it anyhow we wanting to move back for so many reasons saving money is a big one, and we want to be closer to our family&friends and we truley miss our old ward so i hope everything will work out for us
Posted by shiree at 12:00 AM
Monday, September 22, 2008
Well yesterday "my" family came over a few didnt make it but its OK it was nice to be around just my family we don't normally get together so yeah my cousin Kimmy told me she might have a tumor in her kidney which could be cancerous, and that's another thing that might being in her way of getting prego so i guess she will find out hopefully soon. Im just glad we "all" got together and cached up on stuff and reminisced about the old days and i hope we continue to keep in touch more often
Posted by shiree at 11:45 AM
Thursday, September 18, 2008
Well today is the long awaited appt. with the neurologist and i found out finally why he is the way he is he has two of the same cromozones so everything makes sense now and she told me that he might have slight heart issues but we will find out shes having me set up appt. with the oncology, and the cardiology pediatrician so we can get more answers and i have to take him to the hospital for his eeg test on October 6th the Doctor made it clear its important she said she thinks he could possibly being having seizures like i thought cause of his staring off into space . I thanked her and i started to cry a little because i feel like Ive waited it feels like forever to get some kind of answers i kinda felt stupid for crying but i was kinda relieved to finally know whats wrong kev did some research and i guess were lucky to have got kaydin into therapy when we did cause alot of parents didnt have that advantage and there kids situation was worse by not getting the help they needed anyhow here is some info so people can know and i dont have to repeat myself to everyone.
Information about the Potocki-Lupski (dup17p11.2) Syndrome
Individuals with the genetic condition designated as dup(17)(p11.2p11.2) (OMIM# 610883), or dup 17p carry extra genetic information (known as a duplication) on the short arm of chromosome 17.
Each cell of the body should have 23 pairs of chromosomes (22 numbered chromosomes and one pair of sex chromosomes; XX for females and XY for males) that contain the complete genetic information (genome) for the individual. When the egg and sperm cells are formed, the pairs of chromosomes are separated in a process called meiosis, so that each egg or sperm contains only one copy of each chromosome. Errors that occur during this process can result in genomic imbalances such as missing or extra genetic material. These imbalances can cause genetic syndromes that are associated with a wide variety of clinical outcomes.
Many genetic syndromes that were first described on the basis of clinical findings were later found to be caused by genomic imbalances. New high-resolution laboratory tests—known as chromosome microarray analysis or CMA can now detect these genomic imbalances even when a particular syndrome is not suspected.
Two distinct conditions result from errors in meiotic recombination involving the short arm of chromosome 17. Smith-Magenis syndrome (SMS – OMIM #182290) is caused by a deletion, or loss of genetic material, on one copy of chromosome 17. This well-known syndrome is associated with developmental delay, mental retardation, congenital anomalies such as heart and kidney defects, and neurobehavioral abnormalities such as severe sleep disturbances and self-injurious behavior.
For every chromosomal deletion, there exists a reciprocal chromosomal duplication. Although the genomic mechanism for the deletion and duplication is the same, the clinical features of individuals are different. These duplication syndromes have their own distinct clinical features and should not be confused with the deletion syndromes.
Duplication of chromosome 17p11.2 – Potocki-Lupski syndrome (PTLS) (OMIM# 610883) is a newly recognized genetic condition with only a few dozen cases reported in the medical literature. Patients who have this duplication often have low muscle tone, poor feeding, and failure to thrive during infancy, and also present with delayed development of motor and verbal milestones. Many individuals who have PTLS have difficulty with articulation and language processing. In addition, patients may have behavioral characteristics similar to those seen in persons with autism or autism-spectrum disorders. Individuals with PTLS may have heart defects and sleep apnea. The facial features observed in PTLS are subtly similar between individuals but are not usually described as abnormal or striking by physicians.
While fewer than 50 persons with duplication 17p11.2 have been described in the medical literature, we know that this duplication is predicted to be observed in at least 1 in 20,000 individuals. Although PTLS is considered a “chromosomal” disorder, diagnosis is often missed on a routine chromosome analysis. Due to technological advances in cytogenetics, specifically the use of array comparative genomic hybridization (aCGH) for genetic diagnosis, microdeletions and microduplications can be detected with equal fidelity. Hundreds of chromosome segments can be analyzed at one time searching for chromosomal imbalances. We anticipate that many more individuals will be diagnosed with dup 17p11.2 as this testing is performed more routinely in persons with developmental delay, mental retardation, and/or autism spectrum disorder.
Posted by shiree at 4:52 PM
Thursday, September 11, 2008
As "one nation under God, with liberty (freedom) and justice (fairness) for all", the
government IS attempting to do it "God's way" with so much outreach.
Are we to choose for the government to now take a blind eye to God's wishes and stop it completely? And, yet so many emails are sent to fight to keep God involved, to defend Him.
So many want to have it both ways, to talk the talk, and that is so hypocritical.
Don't forget that God designed the entire world and splashed it with all colors.
He commands us to love one another. Period.
And that should reach well beyond these racist toned emails.
Nobody is above another, except for to lift another up.
Subject: FW: TAKE DOWN THE BIRD FEEDER!
Read all the way to the end.....the message is there!
I bought a bird feeder. I hung it on my back porch and filled it with seed. What a beauty of a bird feeder it is, as I filled it lovingly with seed. Within a week we had hundreds of birds taking advantage of the continuous flow of free and easily accessible food. But then the birds started building nests in the boards of the patio, above the table,< /B> and next to the barbecue. Then came the poop. It was everywhere: on the patio tile, the chairs, the table everywhere! Then some of the birds turned mean. They would dive bomb me and try to peck me even though I had fed them out of my own pocket. And others birds were boisterous and loud. They sat on the feeder and squawked and screamed at < style="FONT-WEIGHT: bold; FONT-SIZE: 24pt; COLOR: teal; FONT-FAMILY: 'Kristen ITC'">all hours of the day and night and demanded that I fill it when it got low on food. After a while, I couldn't even sit on my own back porch anymore. So I took down the bird feeder and in three days the birds were gone. I cleaned up their mess and took down the many nests they had built all over the patio. Soon, the back yard was like it used to be. quiet, serene and no one demanding their rights to a free meal.. Now let's see.< face="Tahoma"> Our government gives out free food, subsidized housing, free medical care, and free education and allows anyone born here to be an automatic citizen. Then the illegals came by the tens of thousands. Suddenly our taxes went up to pay for free services; small apartments are housing 5 families; you have to wait 6 hours to be seen by an emergency room doctor; your child's 2nd grade class is behind other schools because over half the class doesn't speak English. Corn Flakes now come in a bilingual box; I have to 'press one' to hear my bank talk to me in English, and people waving flags other than 'Old Glory' are squawking and screaming in the streets, demanding more rights and free liberties. Just my opinion, but maybe it's time for the government to take down the bird feeder. If you agree, pass it on; if not, continue cleaning up the poop
Posted by shiree at 10:45 AM