Well kaydin and i did the 48 hr in patient EEG testing at Mary bridge and it was boring very boring but in the same sense relaxing. He had about 20 wires hooked to his head plus they put respiratory and heart monitors on him while he slept and every time he would fall asleep the respiratory machine kept going off cause his breathing was low but they said nothing worry about but all wait to ask his Doctor at the end of this month and they couldn't tell me if he has any seizers cause the Doctor said the computer has organize all the data cause their so much than it goes threw a process than the doctors have to look at it than they will call me in about 2 weeks if they find anything. Plus he has a neurology appt on the 29th of this month and the nurses were great and they have great volunteers and Julie terry called me and told me next time if i know kaydins going to Mary bridge to let her know before hand and she will make sure she comes to pay a visit the reason is they had a schedule of what was gonna be going on this month and it said "clown visit" so i assumed it was Julie terry cause i know she comes to Mary bridge ive seen her there so mom called her and she called me and said she had no idea she was scheduled to be there but anyhow i thought that was very sweet of her and some little old Lady's came around with hand made quilts and stuffed animals and kaydin got a beautiful quilt and two stuffed animals plus they gave him and boat&sand table brand new still in the box they said they cant use it and someone donated it and they said since kaydin liked boats they wanted him to have it so that was cool and the woman next to my room came over and said hi and shes a foster mom and her foster son was having the same test she said shes in the process of adopting him he was 2 yrs old and she already has 13 children 5 of which she gave birth to but the others are adopted and 4 with disabilities she gave me resources to get 400 free pull-ups a month she said if your child had a diagnoses you get free dypers and she said she had more resources and gave me her number and e-mail so i could get them i thought she was an amazing woman taking in all those kids and she so upbeat i asked her how she does it with 4 kids with disabilities she said she just does "its life" 3 of them have mild retardation but only 7 are at home at the rest are grown up and moved out have great jobs and her daughter is in collage going to be a physical therapist so she and her husband must have did a great job raising them.
Heres my sucky part of my stay Derek forgot to transfer money into the account for the paychecks and we got payed on the 30 of September which was a Tuesday and he didn't transfer money until Saturday so Monday while I'm at the hospital i go and try to purchase a cranberry juice and my card was declined so i called the bank I'm $1,100 in the whole and they told me kevs pay role check was returned so yeah I'm still pissed and my house payment bounced,my power bill bounced and its Thursday and the check still hasn't cleared and of course Derek apologized but I'm still mad not to mention i will have fees but kev said that kdp will pay Ive had to rely and mom and dad to help buy me gas,dypers and food and I'm so lucky to have a friend like like Amy who came up Tuesday and brought kaydin coloring books,candy,snacks,and toys to have fun with and she brought me Starbucks yeah i know shame on me and oh yeah she brought her great sense of humor and we hammed it up and we gossiped well we made a point to when we realized we weren't cause some people think that me and amy gossip but we don't i wont say who said that even tho who said it is one of the biggest behind your back crap talker anyhow i could care less we just thought it was humorous so we try ed to find things to gossip about but really couldn't anyhow over all besides the money deal Mary bridge was so great to kaydin and i they were so nice and they really do care about the kids and kaydin did great specially since he had to be in the bed for two days but having toys helped plus they had 5 different channels of cartoons
Thursday, October 9, 2008
hospital
Posted by shiree at 8:09 AM
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1 comments:
wow that is crazy, sorry about the money woes...I know how you feel. That is so awesome that the hospital is so good to these kids that already have so much going on.
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